DYANNE & LARS’ WAR AGAINST LUNG CANCER

  • September 18, 2015
    Written By Dyanne Soraas

    Week 4 in the war on cancer:
    -Sunday: preparation for the week. We summarize the treatment plan for Dyanne in a one page document. See picture.
    -Monday: meeting with top dogtor in Norwegian lung cancer community. He agreed to take over treatment responsability for Dyanne. But can't/won't help with points 2-4 in treatment plan. First dose of 6Gy x 5 radiation treatment started. We also got results from mutation testing report: we have T790M mutation as well as mutations in PTEN, TP53 and AR genes. And we took over new flat we bought. Almost forgot.

  • September 11, 2015
    Written By Dyanne Soraas

    Week 3 in the war on cancer:
    Monday: Nivolumab injection in Vienna at Dr Ralf Kleef's clinic. Also tried out a bit of "local/regional hyperthermia" that supposedly should work well together with hyperthermia.
    Tuesday: Met with Dr Roger Stupp in Zurich. Dr Stupp is a leading brain cancer specialist and an expert on the novel technology "tumor treating fields". Ruled this out as a possibility for Dyanne's brain met, but might be an option for lesions in lungs.

  • September 4, 2015
    Written By Dyanne Soraas

    Second week in the war on cancer has passed. Some highlights:
    Monday: Good meeting with Aleris (private oncology clinic). But they won't give nivolumab as it still is "off label". Afraid of bad publicity and competing doctors complaining to government authorities. The doctor thinks it is the right drug to try. But board decision to not prescribe drugs "off label". Don't count on private enterprise to save you.
    Tuesday: Ullevål hospital says "no" to nivolumab. They are out of stock and even if they had it wouldn't do it as it is outside of protocol. What is up with disregarding the latest research and insisting on following a protocol that you know leads to certain death? Don't count on big government to save you.

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