• November 28, 2015
    Written By Dyanne Soraas

    Here is a summary of week 14 in the war on cancer.
    Dyanne is phasing out the methylprednisolone, a drug which seems to have an effect not too unlike amphetamine. So she is a bit more tired again. But cough is gone and that is good.
    Our doctors in Barcelona, including the relentless Niki, have assessed the situation and recommed that we stop immunotherapy and erlotinib and switch to a third generation tyrosine kinase inhibitor (AZD9291 or equivalent). The reason is two-fold: (1) the possible pneumonitis makes is potentially dangerous to continue with nivolumab and (2) they do don't see any evidence that nivolumab is working.

  • November 20, 2015
    Written By Dyanne Soraas

    Week 13 in the war on cancer has passed. Here are some highlights.
    Based on Dyanne's cough and a CT scan, we stopped erlotinib and started corticosteroid (methylprednisolone). The nivolumab treatment scheduled in Barcelona on Wednesday was also cancelled. The prednisolone had immediate effect and cough got much better. And Dyanne started feeling much less tired. We then re-started erlotinib after only a day and a half pause.

  • November 14, 2015
    Written By Dyanne Soraas

    On this day of death, our condolances to the people of France and especially the family and friends of the 127 diseased and the many more wounded.
    On this week of death, let us also mourn the father of our friend Nikolaos, who succomed to lung cancer on Tuesday. Let us also mourn the more than 600 people in France who this week will pass from the living to the dead because humanity has not yet solved the riddle of lung cancer.

  • November 6, 2015
    Written By Dyanne Soraas

    Week 11 in the war on cancer has been spent in the Catalan capital, Barcelona. Here we have mixed research, treatment and holiday. Highlights include:
    -Monday: we participated in a meeting between Dr Rafael Rosell and his team and Dr Richard Kast. Dr Rosell (and his team) are world leading lung oncologists. Dr Kast has spearheaded the CUSP (Coordinated Undermining of Survival Paths) project in brain cancer (glioblastoma). The CUSP concept is to use a cocktail of re-purposed drugs to treat brain cancer, and it is is one of the most exciting things that has happened for brain cancer patients since Jesus walked the planet. The purpose of the meeting was to try to develop a similar cocktail for lung cancer. And it was a good meeting.

  • October 30, 2015
    Written By Dyanne Soraas

    Week 10 in the war on cancer is over. Here are highlights of the week:
    -We have run the latest CT scan (see last week's update), which showed some worrying signs of progression, by a number of doctors. Several have mentioned that the growth may be the immune system responding to the immunotherapy. No one knows for sure, but we are crossing our fingers that these optimists are right.

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