• December 12, 2015
    Written By Dyanne Soraas

    Week 16 in the war on cancer. The war was moved to Germany for this week. Definitely an interesting chapter in this saga.
    On Wednesday we met with a clinic called IOZK in Cologne. They offer a dendritic cell vaccine with Newcastle Disease Virus. It sounds promising, especially if combined with e.g. nivolumab. But also expensive. They wanted €3000 for the initial blood test necessary. And treatment would cost around €30 000. What is the efficacy of this treatment? Hard to say...

  • December 5, 2015
    Written By Dyanne Soraas

    Here is an update after week 15 in the war on cancer (time flies when at war...).
    On Monday we saw our oncologist here in Oslo at Radiumhospitalet. Or, our regular oncologist was on some conference, so we had a substitute. But she was up-to-speed, so that was no problem. Good news: they have looked at the CT scan done earlier in November and don't interpret it as progression. The report Aleris had written, based on the same images, seemed to indicate progression. However, Radiumhospitalet did not think so. Also, the MRI scan of the brain showed that things look stable. Overall: good news!

  • November 28, 2015
    Written By Dyanne Soraas

    Here is a summary of week 14 in the war on cancer.
    Dyanne is phasing out the methylprednisolone, a drug which seems to have an effect not too unlike amphetamine. So she is a bit more tired again. But cough is gone and that is good.
    Our doctors in Barcelona, including the relentless Niki, have assessed the situation and recommed that we stop immunotherapy and erlotinib and switch to a third generation tyrosine kinase inhibitor (AZD9291 or equivalent). The reason is two-fold: (1) the possible pneumonitis makes is potentially dangerous to continue with nivolumab and (2) they do don't see any evidence that nivolumab is working.

  • November 20, 2015
    Written By Dyanne Soraas

    Week 13 in the war on cancer has passed. Here are some highlights.
    Based on Dyanne's cough and a CT scan, we stopped erlotinib and started corticosteroid (methylprednisolone). The nivolumab treatment scheduled in Barcelona on Wednesday was also cancelled. The prednisolone had immediate effect and cough got much better. And Dyanne started feeling much less tired. We then re-started erlotinib after only a day and a half pause.

  • November 14, 2015
    Written By Dyanne Soraas

    On this day of death, our condolances to the people of France and especially the family and friends of the 127 diseased and the many more wounded.
    On this week of death, let us also mourn the father of our friend Nikolaos, who succomed to lung cancer on Tuesday. Let us also mourn the more than 600 people in France who this week will pass from the living to the dead because humanity has not yet solved the riddle of lung cancer.

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