Week 90: Roller coaster

Written by Lars Haakon Soraas
14
May

Week 90 in the war on cancer has passed. Wow, has it been a roller coaster. Here are the latest developments:

  • Dyanne has recovered well from last week’s surgery. She officially checked out of the hospital on Monday this week and she is has now also stopped the steroids she was on. She has been a bit tired and felt quite clumsy the last few days. This is, apparently, quite normal post surgery and should go away by itself after some time.
  • The highlight of the week was when we learned that the pathologists here in Oslo have finished their analysis of the removed tissue. They could not find any cancer cells! Learning this was the highlight of the week and we were, frankly, exalted. For a short time. We then spoke to a surgeon at the hospital who knows Dyanne’s case and who has seen the MRI scans and also the pathology report. His take is that the pathologists probably got the “wrong pieces” from an area there was no cancer, but that there probably still is cancer – but in the other pieces of the removed tissue that was not sent to the pathology department at the hospital here in Oslo. As mentioned in last week’s post: we sent a large part of the removed tissue to various labs in Germany and the UK for analysis and development of future treatment options. So a possibility is that there are indeed cancer cell’s in these other parts of the removed tissue… Learning the opinion of this surgeon, we went from being exalted and about to pop the champagne (I did actually buy a bottle – it is still in the fridge), to not knowing whether there was cancer or not in this brain lesion.
  • Over the following days we scrambled to figure out what to do with the tissue which has been sent various places. The first goal is to get as much certainty as possible on whether there were cancer cells in there, or not. Further analysis and development of treatment options and plans will, of coures, depend on the answer to this question. We hope that we in the next week or two will gain certainty on whether there was cancer in there or not.
  • We now basically face two starkly different scenarios: (1) There were no cancer cells in there (a very good scenario) or (2) There were cancer cells in there, the surgeon did not manage to take them all out, these cancer cells are resistant to current treatment, and further radiation may be complicated (as the same area has alredy been radiated). We are crossing our fingers and hoping we are in scenario (1)…
  • Dyanne did a CT scan of the lungs yesterday (Saturday). We will learn the results of this in a few days.

Life, and maybe in particular cancer life, can sometimes be a bit of a roller coaster.

Have a great Sunday everyone!

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