Week 127: Champagne time

Written by Lars Haakon Soraas

Week 127 in the war on lung cancer has passed. And it has been a great week!!! Here is the update:

  • Dyanne did a CT scan of the lungs on Monday and an MR scan of the brain on Thursday. Short summary: both scans were very good! The slightly longer version is as follows. The CT scan showed that the lesion in the lung that was radiated in the end of December had shrunk significantly. It was 13 x 7 mm on the November scan. Now it was 2 x 2 mm. Another lesion in the lung that they had suspected might have been growing cancer had also shrunk a bit. Everywhere else was stable and no new lesions seen. The MR scan basically showed that everything is clear in the brain.
  • We should mention that the results does not mean Dyanne is cured and that the cancer is gone. But getting news that cancer is shrinking, or stable, is so much better than getting news that the cancer is growing (like we did in November). We were overjoyed by the results and popped the champagne with some friends on Friday night.
  • Dyanne is still quite fatigued, and still has stomach issues. The CT scan indicated that she may have colitis, which can be a side effect of some of the immunotherapy treatment she has been getting. If the stomach issues do not improve, some further investigations may be necessary.

So it has been a good week. A great week. We don’t know how long it will last, and maybe that is why we find it so easy to be exhilarated and enjoy the soak in the good news and just celebrate:)

While we were overjoyed with the good scan results, we received the tragic news that a member of our EGFR email group had passed away. Dave was 32 years old and, together with his wife Emly, had a young daughter. You can see a moving video of the young family here: https://www.youcaring.com/davidkay-868644. In the email where she informed us of Dave’s death, Emly wrote the following:

“I leave you with a quote from Aaron Sorkin, Dave’s favorite tv producer. Don’t ever forget that a small group of thoughtful people can change the world, it’s the only thing that ever has.”

These words ring true. Our goal is to defeat EGFR mutant lung cancer. So that Dyanne can live and so that no more young families around the world will have to go through what Dave, Emly and their daughter have done.

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