Week 159-160: Please donate to help fund EGFR lung cancer research!

Written by Lars Haakon Soraas

Weeks 159 and 160 in the war on lung cancer have passed and we would like to encourage everyone to donate some money to help fund research on EGFR mutant lung cancer. For details, see the paragraph after the bullet points. First the highlights of the past two weeks.

  • A plan for how to deal with progression is gradually forming. We will be radiating two of the three growing lesions in lungs. The third lesion will then be (attempted) biopsied and then treated with ablation. Radiation will be starting on Friday this coming week and then also take place on Monday and Wednesday in the following week.
  • Dyanne was in Frankfurt this week and got another vaccine injection and also low dose nivolumab.
  • CEA, a tumor marker that can be measured from blood, continues to climb. At the end of this post is a chart showing how it is developing.
  • Dyanne has generally been in good shape the past two weeks.

Have you ever wondered how you can help speed up scientific progress so that EGFR mutant lung cancer can be cured or, at least, turned into a chronic disease? Well, now you have the opportunity to that. An advocacy group dedicated to EGFR mutant lung cancer (the type of lung cancer that Dyanne has) has been created and they have now opened up for donations. All proceeds will go towards funding research that can help rid the world of this disease. For details on how to donate, please see this page: https://www.supportalcf.org/egfr/Donate. Donations, big or small, will be much appreciated!

The World Conference on Lung Cancer (WCLC) is taking place in Toronto from next Sunday (23rd September) to Wednesday 26th September. This is the world’s largest conference dedicated to lung cancer research. A lot of abstracts have already been published on the website of the conference. These are a goldmine of the latest results relevant for Dyanne’s disease and I have, consequently, spent quite a bit of time reading through the material. I have posted on twitter some of the research I have, so far, found the most interesting. For anyone interested, the tweets can be found here: https://twitter.com/search?f=tweets&q=%40larshaakon%20%23wclc18&src=typd.

Hope everyone has had a good weekend.


Chart of CEA (nivo=nivolumab, ipi=ipilimumab, Neo=vaccine treatment in Frankfurt, FMT=fecal microbiota transplant)

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