Weeks 133 & 134: a bit of a flu

Written by Lars Haakon Soraas

Weeks 133 and 134 in the war on lung cancer have passed. Here are the highlights:

  • It seems like Dyanne has caught the flu or something. She has been a bit nauseous, soar throat and fatigued. It seems to be getting better now and she was at a concert last night and we went for short cross-country ski trip today.
  • Dyanne was this week also in Germany to get another injection of the personalized peptide vaccine. She did not get nivolumab as she was not in the best of shape.
  • Dyanne has also done a CT scan and an MR scan and we will meet our oncologist here in Oslo on Tuesday this coming week to learn the results. We cross our fingers and hope for the best.

This past week I was at a small conference organized by the industry association of pharmaceuticals here in Norway (Legemiddelindustrien – LMI). The topic of the conference was clinical studies and I was invited to give a “patient perspective” on this. In case anyone is interested, my presentation can be found here. The short summary is, sadly, that the situation is grim. There are extremely few clinical studies for “terminal” cancer patients and the situation is unlikely to change anytime soon.

On a more hopeful note, the abstracts from the upcoming AACR Annual Meeting, one of the largest cancer research conferences in the world, have just been released. For anyone interested in cancer research, spending some time searching through these can be a good investment. The abstracts can be found here: http://www.abstractsonline.com/pp8/#!/4562. From the program, it seems that there will be some interesting news about immunotherapy in lung cancer that will be presented at the conference itself (which takes place 14-18 April). Crossing my fingers it will be good news!

Finally, I am planning to attend a conference in Madrid this coming week. It is a relatively small conference and it is focused on immunotherapy for lung cancer: https://www.iaslc.org/events/iaslc-lung-cancer-immunotherapy-meeting-2018-lci18. It is free for patients and patient advocates. So do join me at the conference if you have the opportunity!

Have a good Sunday evening everyone!


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